The association in the media 2020

Loyal stake  Medicine section  05/05/20

For Parkinson's Awareness Month In Israel there are 30,000 Parkinson's patients, 70% of whom suffer from tremors

Dr. Sandra Benizri, a senior neurologist, presents the common myths surrounding the disease that are important to raise public awareness. The outbreak of the corona epidemic mainly endangers the elderly population, where Parkinson's disease is more common.

Amir Carmin, the chairman of the Parkinson's Association emphasizes: "Parkinson's is a complex multisystemic chronic disease, and dealing with it is very challenging. The Parkinson's Association focuses on making reliable and factual information available to patients and their families, especially in this period of the Corona outbreak.


knowledge intelligence The website of the newspaper from Beit YNET   07/05/20

"Celebration in the human body": This is how Yerah Galter of Modiin dealt with Parkinson's disease. About three years ago, he discovered that he had the disease, and decided to write a book about his personal struggle to inspire others. "Writing was a kind of mental therapy"

Coping with Parkinson's? You may be able to draw inspiration from the book of Yerah Galter, a resident of Modi'in who contracted the disease three years ago, and as part of his special coping he wrote a book called "Celebration in the Human Body", in which he humorously describes the journey he has gone through since the discovery of the disease. The 74-year-old Galter shows in his book how after the initial shock of the news about the discovery of the disease, it is possible to live with optimism and hope.

As part of promoting awareness of the disease and its challenges, the association brings the personal story of Galter, who managed to "defeat the disease" in an inspiring way.

Glatter describes in his book the pressure his children exerted on him to go to a neurologist for examination, after they noticed symptoms such as slowness in activity and speech, monotonous and weak speech, stiffness in his left hand and leg, an expressionless face and slight tremors in his hands.

I hope," says Galter, "that the stories I told and wrote have the power to help people at the beginning of their journey against the disease. To my great joy, my disease is in its early stages and I hope it will be like this for a long time. Writing the book was a kind of important mental therapy for me that helped me to overcome the mental obstacle and understand that I am sick."

"Parkinson Israel" Association May marks disease awareness month. Parkinson's is a chronic degenerative neurological disease, which has extensive consequences on the patients' quality of life. It is estimated that there are about 30 thousand patients with the disease in Israel.

https://modiin.mynet.co.il/culture_entertainment/article/HJQwcfgcL


Yedioth Modi'in   from "Yediot Communication"    08/05/20

"Writing was like mental therapy"

Yerah Galter from Modi'in found out that he has Parkinson's disease and decided to write a book about the struggle to inspire other patients

The 74-year-old Galter shows in his book how after the initial shock of the news about the discovery of the disease, it is possible to live with optimism and hope. As part of promoting awareness of the disease and its challenges, the association brings the personal story of Galter, who managed to "defeat the disease" in an inspiring way.

Glatter describes in his book the pressure his children exerted on him to go to a neurologist for examination, after they noticed symptoms such as slowness in activity and speech, monotonous and weak speech, stiffness in his left hand and leg, an expressionless face and slight tremors in his hands.

I hope," says Galter, "that the stories I told and wrote have the power to help people at the beginning of their journey against the disease. To my great joy, my disease is in its early stages and I hope it will be like this for a long time. Writing the book was a kind of important mental therapy for me that helped me to overcome the mental obstacle and understand that I am sick."

"Parkinson Israel" Association May marks disease awareness month. Parkinson's is a chronic degenerative neurological disease, which has extensive consequences on the patients' quality of life. It is estimated that there are about 30 thousand patients with the disease in Israel.


Yediot Hasharon   from "Yediot Communication"    28/05/20

Israel's first choir for Parkinson's patients was established in Ra'anana

The choir, which was established in recent months in Ra'anana, returned to activity after the Corona crisis, although still only on Zoom. The founder Pnina Kusman: "Through singing you can delay the decline in the ability to speak"

And even if our hands are shaking, they still know how to draw and write, hug and love," begins the song written together by the members of the Parkinson's Choir that was established in Raanana about six months ago. "Even though Parkinson's disease damages the vocal cords and our ability to speak gradually becomes slow and weak," say the choir members. The singing and group work in the choir give us experience and pleasure and help us deal with the disease."

"Speech disorders - slow, weak, unclear, monotonous or fragmented speech - are very common among those dealing with Parkinson's. This makes it very difficult for them to function and their quality of life," explains the choir's founder Pnina Kosman, a pianist and a refreshing music therapist. "With the help of working on the voice - exercises and singing, it is possible to delay the aggravation of the disease and slow down the retreat of their ability to speak and maybe even improve it. All this combined with enjoying the magic of music and group work."

"The uniqueness of the choir is in the combination of the vocal side and the social side, and there is no doubt that in this way it is a refreshing and welcome innovation for its participants," she says The CEO of the Parkinson Israel Association, Riki Navon.


Yediot Hasharon   The newspaper website From home YNET  29/05/20

Israel's first choir for Parkinson's patients was established in Ra'anana

The choir, which was established in recent months in Ra'anana, returned to activity after the Corona crisis, although still only on Zoom. The founder Pnina Kusman: "Through singing you can delay the decline in the ability to speak"

And even if our hands are shaking, they still know how to draw and write, hug and love," begins the song written together by the members of the Parkinson's Choir that was established in Raanana about six months ago. "Even though Parkinson's disease damages the vocal cords and our ability to speak gradually becomes slow and weak," say the choir members. The singing and group work in the choir give us experience and pleasure and help us deal with the disease."

"Speech disorders - slow, weak, unclear, monotonous or fragmented speech - are very common among those dealing with Parkinson's. This makes it very difficult for them to function and their quality of life," explains the choir's founder Pnina Kosman, a pianist and a refreshing music therapist. "With the help of working on the voice - exercises and singing, it is possible to delay the aggravation of the disease and slow down the retreat of their ability to speak and maybe even improve it. All this combined with enjoying the magic of music and group work."

"The uniqueness of the choir is in the combination of the vocal side and the social side, and there is no doubt that in this way it is a refreshing and welcome innovation for its participants," she says The CEO of the Parkinson Israel Association, Riki Navon.

https://raanana.mynet.co.il/culture_entertainment/article/Bk35EiAjI


Radio here is culture   "60+" program    14/06/20

The Parkinson Choir

An interview with Panina Kiss, music therapist and director of the choir, and Varda Tal, coping with Parkinson's, member of the choir - about the story of a patient choir dealing with Parkinson's disease, how singing helps and contributes to patients and the Parkinson's Association.

https://www.ifatmediasite.com/VT/ItemNew.aspx?ID=9963406

 


Latest news  The health supplement times +  22/07/20

Parkinson's and sleep

Sleep disturbances can be a sign of the progression of Parkinson's disease, according to a recent study carried out at the Ichilov Hospital. The study included 305 Israelis suffering from Parkinson's in various stages of the disease, and 205 healthy subjects... The results of the study showed that as the disease progresses, not only mobility during the day is impaired, but also mobility at night while sleeping, and it seems that the impairment of sleep quality also worsens...

Dr. Saar Anis, a senior neurologist at the movement disorders unit in Ichilov, explains that the meaning is that Parkinson's disease "does not go to sleep", therefore it is very important to treat the improvement of mobility during sleep, as well as to treat other sleep disorders, primarily difficulty falling asleep, according to The Parkinson's Association, is one of the common symptoms among patients.


Wint   "Engagement" section    19/10/20

"Even if our hands are shaking - they still want to hug"

The story of the first Parkinson's Choir in Israel, as told by its participants and the choir director. Watch the members of the choir sing an original song about dealing with the corona virus

"A few years ago I was lucky enough to meet people with Parkinson's, and as a result I started music groups for them that combined diverse work with rhythm, singing, improvisation and more," says Pnina Kosman, a music therapist.

"I recently retired, and I worked to establish a choir for them, knowing that with the help of working with the voice - exercises and singing, it is possible to delay the retreat of the speech qualities characteristic of the disease," she adds.

With the help of the "Parkinson Association" a group of ten participants was created and at the end of December 2019 the group started working at Kosman's clinic, at her home in Ra'anana. All participants are dealing with Parkinson's at different levels of functioning.

Many studies have shown that working with rhythmic patterns as an external stimulus can optimize motor planning and improve walking and movement," she adds. "The external rhythm encourages use of the ability to synchronize movement, which bypasses the damaged automatic processes in Parkinson's patients.

Apart from its vocal and therapeutic benefits, singing in a choir encourages sociability, increases motivation, involvement in the environment, awareness and allows expression of creativity. Studies have clearly shown that following singing and playing, the quality of life of Parkinson's patients improves."

"There is no doubt that singing helps those dealing with Parkinson's disease. The existence of a normative choir within the community is a refreshing and challenging innovation. Because this singing cannot be stopped, especially during the time of the Corona virus," Koffman concludes.

Parkinson's Association in Israel Operates not for profit, regardless of race, sex, religion, or political opinions, and is managed by patients, members of the association, family members and friends. The office bearers and activists in the association perform their duties voluntarily and do not receive a salary.

Alongside the association's management, there is a medical advisory committee, consisting of the top neurologists in Israel who specialize in Parkinson's disease.

The aim of the association is to serve as an address for Parkinson's patients and their families. The patients can use the association to ease the burden associated with living with the disease and improve the quality of their lives and the lives of those close to them.

https://www.ynet.co.il/activism/article/Bk9FQb04w#autoplay